Donating your tissue for cancer research is a valuable gift. By donating to the Daisy Tumour Bank, you will help to improve the lives of cancer patients of the future.
How does the Daisy Tumour Bank work?
The Daisy Tumour Bank collects samples from patients for the purpose of cancer research. The Bank is located as at Castle Hill Hospital in East Riding of Yorkshire, to facilitate the timely collection, processing and storage of samples from patients attending the hospital with a suspected or confirmed diagnosis of cancer.
Patients can gift their samples to the Bank by giving voluntary consent, to allow the University of Hull to become the custodian of their samples. Patients do not need to make additional visits to the hospital as samples are taken during routine care.
The samples are stored in secure biobank freezers until they are used for research. In excess of 80,000 frozen samples can be held. The University of Hull holds a Human Tissue Authority Licence (licence number 12078) for the legal storage of human tissue.
What samples do the Daisy Tumour Bank collect?
The Daisy Tumour Bank collects small pieces of tissue surplus to diagnostic requirements. These may consist of tumour or normal tissue next to the tumour. Current collections include malignant pleural mesothelioma, oesophageal and colorectal cancers. Blood samples are also collected from patients with haematological malignancies including chronic lymphocytic leukaemia.
Who uses the samples for research?
Researchers within the UK and European Economic Area can apply to the Daisy Tumour Bank for samples to undertake cancer research, to improve cancer detection and find better treatments for patients with cancer. The applications are assessed by members of the Daisy Tumour Bank Access Committee, to ensure the proposed research is original, of a high standard and that ethical approval is in place.
What data is held about the samples or donors?
To enable the samples to be useful for cancer research, the Daisy Tumour Bank collects relevant clinical data. Data is stored securely and confidentially in accordance with legal requirements.
Scientists that use the samples for cancer research will have access to relevant clinical data, but will not be able to identify donors.
How to donate tissue
Donating your tissue is voluntary. To donate samples you must give your consent, in addition to consent for your routine treatment. You are free to withdraw your consent regarding your donation at any time and this will not adversely affect your medical care in any way.
If you are attending oncology or haematology clinics at Castle Hill Hospital and you are interested in donating tissue or blood, please advise your NHS clinical care team that you would like to make a donation. If samples are being collected within that team and you are eligible to donate, a member of the Daisy Tumour Bank team will contact you to discuss donation and answer any questions you have.
Unfortunately, the Daisy Tumour Bank does not have a presence in all clinics, so we cannot guarantee all patients the opportunity to donate.
GDPR: Information Notice for Daisy Tumour Bank Donors
Under the EU General Data Protection Regulations (GDPR) participants must be informed of how their personal data will be handled. Please refer to the Daisy Tumour Bank Privacy Notice for further information.